Being that my last blog was less than upbeat, I wanted to follow it up with a happy synopsis of the miracles that have been happening in our lives lately. I don’t use the term “miracles” lightly either. Sure our house has been a little chaotic lately, but our house is always chaotic. Let’s face it, children usually bring some chaos along with them even when they aren’t autistic. So add some ADHD and autism to the mix, and what would you expect? The pace never slows down with eight kids anyway, so sometimes it is hard for me to sort out what amount of the chaos comes from autism, and what is just naturally occurring chaos!
Anyway, I’ve been reflecting this past week on the many changes we have seen with our kiddos since beginning the Spectrum Balance Protocol back in November. Anyone who knows us is well aware of how long we have been searching for the “magic bullet” to help our children. We have tried so many things over the years that people stopped taking us seriously and began thinking we were far out wacko’s who would “try anything”. I guess there is some truth to the “try anything” part of that theory, but trust me everything we did was well researched and not simply done on a whim. Despite the research, we have still been burned over the years by swindlers who are only in it for the money. So when Dr. Shauna came along with her Spectrum Balance Protocol, we were more than a little wary of the whole thing.
Desperate for change, we decided to try the protocol ourselves and see what happened. Unlike the many other diets we have tried over the years, the SBP diet came with the promise of an end in sight. It is a temporary diet, and we were told to expect about six months on the diet strictly before we would be allowed to eat more “normally” again. We decided that we could do anything for only six months, and so we began the program full force back in November. I have not done a great job keeping the website current with all of the new info and progress because we have been so busy living it out. However, I would not be doing any favors if I kept the info to myself because it has been truly miraculous!!
Beginning the diet was a little tough because we had to clean out our pantry and refrigerator of all non-diet approved foods, and it was quite an arduous task! We had A LOT of food to sort through, and even though most of it was organic and “healthy”, the majority of it was not SBP approved. Could it be as simple as eating the right foods to heal our children and see real progress for the first time???
The first month on the diet was rough. Behaviors came out of nowhere and the house went nuts as the children’s bodies adjusted to the change and began pushing the excess manganese out. That’s what this diet is all about…striking a balance between the iron and manganese levels in the body. Sounds weird right? But again, we were willing to try it because it is not harmful, nor is it expensive like other treatments we have done. It is just FOOD!
Two months or so into the diet things began to level off, and even more exciting Nicky began to talk! He started off saying single words more often which was incredible for us. Before the diet, he would attempt to say a word every so often, but it was rare and the words were unintelligible. Now he was saying words easily and several times a day. We were absolutely ecstatic! I never would have believed it if I hadn’t seen the progression for myself. Within three months he was not only talking a lot, he was also acquiring new skills daily. He learned to play video games (I know that sounds silly, but it takes dexterity and hand eye coordination to play these games, and he didn’t have that before.) He also started understanding directions, expanding his extremely self-limited diet to include fruits and vegetables, playing with his siblings, and even saying his ABC’s! We were floored, trust me.
Next came his first sentences. He said “Play fast Gin-ya” to his music teacher Virginia, and then “Super Paper Mario” when asked what game he wanted to play on the Wii. My goodness, my non-verbal son was answering questions! Even more wonderful was when his personality began to emerge. He said “no” to me for the first time, and had normal kid temper tantrums (for a reason) rather than the raging autistic ones that never made any sense to us. Each day seemed to bring something new for which we were so grateful for.
Now here we are five months into the protocol and we are hopeful for the future for the first time ever. God whispered to me the other day, “What will you do differently once the boys no longer have autism?” And I was shocked to even have had such a thought. Before the future looked kind of bleak, but now I just have to keep reminding myself that the progress is ongoing and we are still making headway. After everything we have done over the years, to get a completely different child in only a few months is nothing short of miraculous! And it’s not just Nicolas either. Being the most severely affected, he has showed the most obvious progress because he had so far to go. However, the other children have also made wonderful progress and it has been a huge blessing for our entire family.
The other children have made big strides with overcoming their obsessive compulsive disorders, anxiety, ADHD symptoms, and many of their autistic symptoms as well. Leah’s dyslexia has even improved to the point where she can read many words and write most of them too! So when I am feeling overwhelmed with life like all mothers do at times, I only need to reflect on the events of the past few months and I am again reminded of how much we have to be truly grateful for.
I have always said that once I find the “key” to unlocking autism in my children, I am going to share it with the world. Well, this tiny blog is a start and as the children continue to make progress I hope to get the message out in a big way. Other families deserve to know about this ground breaking work of Dr. Shauna and the No Harm Foundation. She is truly in this to help people, and not to swindle them like so many other doctors who have profited from the increase in autism. In fact, you can download a copy of the diet for free on her website (www.noharmfoundation.org). The link is also on my home page at the bottom left, and it is called the Spectrum Balance Protocol. Although seeing her for a consult is helpful, you can do this diet on your own.
I will be working hard to update my supplement page so that you can see what supplements are helpful on this diet. Spirulina is a key supplement because it is very high in iron which is great for helping things along. Manganese and iron share the same receptor sites in the brain, so increasing dietary sources of iron pushes out the manganese faster and replaces it with iron. Once the balance is reached, it will be stable unless the body is overloaded with manganese from sources like vitamin supplements and processed “fortified” foods. I know it’s a lot to take in, but it really does work if you stick to the plan. My only regret is that we didn’t have this information years ago. It would have saved us so much money, time and aggravation! But we can’t look behind us now, only ahead to the wonderful new life that awaits us. We are already seeing proof of it, and with each passing day we are rewarded with new words and skills that the children keep on acquiring. Life is grand folks!
